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  4. Analyzing Distributed Medical Data in FAIR Data Spaces
 
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2023
Conference Paper
Title

Analyzing Distributed Medical Data in FAIR Data Spaces

Abstract
The exponential growth in data production has led to increasing demand for high-quality data-driven services. Additionally, the benefits of data-driven analysis are vast and have significantly propelled research in many fields. Data sharing benefits scientific advancement, as it promotes transparency, and collaboration, accelerates research and aids in making informed decisions. The European strategy for data aims to create a single data market that ensures Europe's global competitiveness and data sovereignty. Common European Data Spaces ensure that data from different sources are available in the economy and society, while data providers (e.g., hospitals and scientists) control data access. The National Research Data Infrastructure for Personal Health Data (NFDI4Health) initiative is a prime example of an effort focused on data from clinical trials and public health studies. Collecting and analyzing this data is essential to developing novel therapies, comprehensive care approaches, and preventive measures in modern healthcare systems. This work describes distributed data analysis services and components that adhere to the FAIR data principles (Findable, Accessible, Interoperable, and Reusable) within the data space environment. We focus on distributed analytics functionality in Gaia-X-based data spaces. Gaia-X offers a trustworthy federation of data infrastructure and service providers for European countries.
Author(s)
Jaberansary, Mehrshad
Maia, Macedo
Ucer Yediel, Yeliz
Fraunhofer-Institut für Angewandte Informationstechnik FIT  
Beyan, Oya Deniz
Fraunhofer-Institut für Angewandte Informationstechnik FIT  
Kirsten, Toralf
Mainwork
The ACM Web Conference 2023. Companion of The World Wide Web Conference WWW 2023  
Conference
World Wide Web Conference 2023  
DOI
10.1145/3543873.3587663
Language
English
Fraunhofer-Institut für Angewandte Informationstechnik FIT  
Keyword(s)
  • data spaces

  • distributed analysis

  • FAIR principles

  • healthcare

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