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Code of conduct for FP7 researchers on medical and biometric data privacy

: Menevidis, Z.; Swartzman, S.; Stylianidis, S.

Menevidis, Z.; Schug, S.H.:
Ethical implications of the global use of digitised biomedical and biometric data. Workshop Proceedings : Seventh framework programme; Held in october 2010 in Warsaw, Poland
Heidelberg: Akademische Verlagsgesellschaft Aka, 2011
ISBN: 978-3-89838-649-4
ISBN: 978-1-60750-720-8
Workshop "Ethical Implications of the Global Use of Digitised Biomedical and Biometric Data" <2010, Warsaw>
Fraunhofer IPK ()

Ethical implications of data collection, use and retention affect society both socially and financially. These impacts have been identified and categorised by the ETHICAL Consortium, which also studied the state of the art approaches and skills and analyzed moderated dialogue and consultation results, leading to the development of ethical recommendations for EC policy directives. Although EC DG of Research has put forth several measures, regulations and mechanisms for the preservation of ethical requirements and accompanying commitments, studies and debates over and over attest that additional articulation and implementation of a code of conduct for FP7 researchers are necessary, in order to provide guidance on data privacy in practical terms in order to minimize misconduct and misuse.
Taking into account the findings from initial ETHICAL studies that are presented in this workshop documentation the ETHICAL Consortium made an attempt to meet this need by providing recommendations for a code of conduct and implementation measures for FP7 researchers with this report on data collection, use and retention in medical and biometric applications. This particular work focuses on providing a practical tool for usage during proposal submission and contract conclusion as well as during the implementation of FP7 projects, which will act as a toolkit for the relevant activities to be implemented, measured and evaluated.